patient corner

Rare disease

Rare diseases affect over 350 million people across the globe. Most rare diseases like haemophilia and growth disorders are chronic, lifelong genetic conditions. Though each rare disease is complex and challenging to diagnose and manage, they have many things in common.

What will you find on this page?

Here you will find everything related to our treatments for haemophilia and growth  disorders, information on how to use your medication devices, as well as information about our clinical trials, and our treatment innovations.

Explore our rare disease page

Our products

Image of a scientist looking into a microscope

Our medicines

Our haemophilia treatments cater to the diverse needs of people with rare blood diseases, and our growth treatments help promote growth in children, teens and adults with growth hormone deficiencies.

Image of a young girl checking her blood sugar levels

Pens and needles

Our growth hormone treatments are available in prefilled pens, which you use to inject the medication under the skin.

Doctor in a discussion with a patient

Instructions for use

Our pens and needles are designed to make administering your growth hormone treatment as simple and convenient as possible. For instruction and guidance on how to use your haemophilia treatment, please speak to your healthcare provider.

Reporting

Contact us

Innovation

Image of a scientist working in the lab

Our research technologies

Our products are based on peptides and proteins, and we are constantly pushing the boundaries to engineer, formulate, develop and deliver innovative protein-based treatments for people living with serious, chronic diseases.

Image of a scientist working in the lab

Cell therapy

We are working with cell therapy to develop treatments for type 1 diabetes that have the potential to halt disease progression — or even reverse it. We are also looking at other diseases, such as Parkinson's disease, and chronic heart failure.

Close up image of a microscope

R&D pipeline

Our scientists are currently working on novel and innovative treatments to address the unmet needs of people living with diabetes, obesity, cardiovascular disease, haemophilia, growth disorders and metabolic dysfunction-associated steatohepatitis (MASH).

Learn about our clinical trials

Over 25,000 people participate in a Novo Nordisk clinical trial each year. At any given time, there may be more than 100 active Novo Nordisk clinical trials.

Changing haemophilia

Developed for people living with rare blood disorders, ‘Changing haemophilia’ is a support site with information about the science behind blood disorders, as well as advice on living with a blood disorder. There is also a dedicated area for parents and carers, as well as information on how to discuss your disease with your healthcare team.

Photo of Chris Bombardier who lives in the US with haemophilia B

Types of blood disorders

Discover more about the science behind different types of blood disorders, from haemophilia to rare clotting factor deficiencies and women living with haemophilia.

Photo of Harry and Olivia Osborne who live in the UK. Harry is living with haemophilia B

What to expect following diagnosis

If you have found out your child has haemophilia you may be struggling with a range of emotions and potentially a little overwhelmed from all of the information you have received.

More than height

Developed to raise awareness about growth disorders, ‘More than height’ contains patient stories, advice and tools to inform and support parents and carers of children with a growth disorder.

Photo of Holly and Evie Lloyd Garwood with a growth hormone disorder in the UK

Insights from a parent

As a growth hormone deficiency (GHD) parent, who fought for several years for my daughter’s diagnosis, my heart knows how this medical issue can change your entire family’s life. It is not as simple as it sounds.

Photo of Jake Lowe and his mother in the UK. Jake is living with a growth hormone disorder.

Talking to your doctor

If you are worried about your own or your child’s growth you should visit the doctor. Here we can help you plan for the conversation.