HERO (Haemophilia Experiences, Results and Opportunities) is an international initiative guided by the HERO International Advisory Board and supported by Novo Nordisk. HERO aims to build a comprehensive understanding of life with haemophilia as seen from the perspective of people with haemophilia, their families and their healthcare providers.

Giving haemophilia a voice

The goal of HERO is to:

  • Advance the understanding of psychosocial issues related to living with haemophilia
  • Provide a strong platform for building advocacy and supporting improvements in care
  • Facilitate use of outcomes to advocate for improvements for quality of life and health outcomes for people living with haemophilia

Visit www.herostudy.org to learn more and get involved.


Insight and hope for people living

The HERO study has given us some key insights into the challenges facing people living with haemophilia. Read more.


HERO Summit 2013 puts the insights to work

HERO Summit 2013 puts the insights to work. Read more.